So I know many of you are waiting on MRI results. Well they are not good. The tumor has grown since the last scan in early August. So we didn't do chemo today, no point since its not working and we have to be off chemo for a few weeks before we can start something new. So tonight we wait for a call from Ben's oncologist to find out what is next. Basically our only options are Phase I clinical trails so we wait to find out which one we are qualified for and if we are excepted. Right now it looks like Baylor (Texas Children's) or St Jude. We will update when we have a plan. Thank you for your continued prayers. Please no calls tonight, texts are fine but we are just tired of repeating ourselves today so we aren't really up for chatting.
Love and Prayers
Erin
No words...just prayers!!
ReplyDeleteWe love you!!
Hank, Melanie & Kale
Erin,
ReplyDeleteKnow that you have everyone's support, love and prayers. Thanks for keeping this blog updated and let us know if you guys need anything extra.
Love,
Joe and Amanda
Praying, with all of my heart, for Ben's healing.
ReplyDeleteWe love you guys!
ReplyDeleteMs. Mel and the gang
Erin, I am praying so hard for God to provide you with a new avenue for Ben that will provide total healing. I love your boy so much. Take care of yourself, too. Prayers, love and hugs,
ReplyDeleteMarsi
We are thinking and praying for all of you. A lot of prayers are being said for precious Ben. Take care.
ReplyDeleteLove and Prayers,
Cindy Kitchen and family
You are amazing parents and individuals.
ReplyDeleteOur love and prayers.
Thanks for sharing the wonderful week-end with us.
Love Grandma and Grandpa
What tremendously strong parents Captain Pirate Ben has! Thank YOU for your update and sharing your Lil' Ben with us.
ReplyDeleteHis family/friend group is like no other...his Prayer TEAM endless in numbers. PRAYERS CONTINUE God meets ALL your needs ~ for each of you!
We are here if you need us.
Our love your way,
Jimbo and Lisa Coarsey
Your Little Pirate has been added to a series of prayer lists that I have. Know that our good thoughts and constant prayers are with you all. Ben will be Healed!!!
ReplyDeleteSharon Williams
Love and Prayers going out your way (they always are and have been, but sending out extra, extra, extra ones)! I'm sending cyber-hugs too {{{{{{HUGS}}}}}}. You guys are beyond amazing. Love you.
ReplyDeleteI wish ben all my luck. I'll say a special prayer for him each night. If there is anything I can do, let me know. Captain Jack would love to spend some time with him whenever he feels up to it.
ReplyDeletehttp://www.facebook.com/frankpicone
nolasparrow@cox.net
Praying for all of you! I am just now getting to know Ben through this website, I have a lot to read. You all are in my thoughts and prayers!
ReplyDeleteCharlotte/Angel_Wings
Ashley and Dennis' Mom
http://www.caringbridge.org/tn/dennis111
Praying for our little buddy.
ReplyDeleteDawn & The Lewis Boys
Love and prayers
ReplyDeleteIf there is anything that Tom and I can do, just send a signal across the street...
ReplyDeleteLove and prayers
Tom and Kim
Hugs prayers and kisses. You guys are my heros!! What an incredible family! Captain pirate Ben, I love you bunches and bunches!! Hey, how about sending the first play in to the saints for their big game next week! They'll win, if you help them out.
ReplyDeleteMuch love and many prayers!
Mrs. Rita