Well today is Shaun's third birthday. He had a GREAT party on Sunday with lots of his and Ben's friends from school, his cousins, and kids from the neighborhood. The kids had a great time in the pool and on the largest water slide I have ever seen! It was almost as tall as our two story house. And of course the adults had a great time too, eating some delicious crabs that Big Ben boiled, and going down the giant water slide of course! Ben's cousin Blake and his family came down from Memphis for the weekend and it was great to see them and have them at the party.
Saturday Ben had his T-ball party and he can't wait for next season, Ms Jessica said she would coach again...YEAH!!!!! We have a busy week this week preparing to leave for San Diego. And Ben has clinic tomorrow. Probably a long one, because he has to do his pentanamine treatment, have blood drawn for counts, and see the doctor, plus we have his appointment with the eye doctor he has been seeing since diagnosis that is monitoring the turn of his eye that was causing his double vision at the very beginning. But his eye looks good so I am not worried.
I try to keep Ben's blog as positive as possible I think its important for us to maintain a health and happy attitude and try not to dwell on the bad things, but the reality is Ben has brain cancer and alot of other kids do too! The DPIG community (Ben's diagnosis) has had a very difficult couple weeks loosing 9 kids in the last three weeks. And there are others who are in desperate need of your prayers, especially our dear friend Luke we have been following his journey since the beginning, he was diagnosed in January (two months after Ben). He is in the hospital and having alot of pain. Please keep this family in your prayers we really need a miracle for Luke right now. If you want to check in on Luke this is his site http://www.caringbridge.org/visit/lukepollok . All our kids need your prayers but Luke needs a few more today.
We are so lucky that Ben has responded to treatment as well as he has. He has had little to no side effects and his life is pretty much that of a normal 5 year old except for all the doctors appointments, taking pills, being a little less coordinated than he would like, and a little more tired than most kids (yet he still has MUCH more energy than his mom!). So thank you for all your prayers, Ben is doing so well and we are excited for that to continue. Like I said last time his next MRI is August 12th and he will be starting Kindergarten shortly after that. I'm still a little nervous about Ben starting a new school, I don't think I have to tell you all how much we all love Brighter Horizons and how nice it is to be able to go to work and KNOW that he is being watched and loved there as much as he is at home.
We probably won't post before we leave, and not sure if I'll post in San Diego or not, might not take the laptop - oh who am I kidding I can't be away from facebook for a week!
Love always
Erin and the family!
Tuesday, July 14, 2009
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7 comments:
Hi
We had a great time at Shaun's party Sunday. The girls were exhausted when we got home. Hope you have a safe trip to San Deigo. Erin I will keep all of your friends in our prayers.
The Brathbury Family
Happy Birthday Shaun!
Emma laughs at me when I tell her that I don't want her to grow up so she can stay at Brighter Horizons forever. She says, "mommy, I'm growing big big and have to go to St. Andrew, I can't stay at BH forever".
I can tell you that on August 7 I will be crying my eyes out when I take her blanket and pillow from BH for the last time. Emma said she would laugh at me if I cried.
Have a great time in San Diego. We look forward to seeing all of you when you return.
You are always in our thoughts and prayers.
Margaret Jaques
Hey Guys,
Happy Birthday Shaune!!
Hope you all got out of clinic as fast as we did. It was faster than usual today.
Wishing you all a great trip. Sounds like another fun one. Have a great time, adn we will wait to see pictures.
Love and Prayers,
Cindy and Anna
Have a great time in San Diego, Sarrats-all. Our thoughts and prayers are with you at all times and with the nine families and their losses and with Luke right now especially. How old is Luke? Maybe you've mentioned it before and I missed it.
Love,
Megan's mom Peg
OK...we really need to get back on the same clinic schedule! I miss seeing you guys. Have fun on your trip!!
Love,
Melanie & Kale
That was a great Birthday Party Shaun. The best crabs and Dora Cake that we have ever had. Ben Myriah forgot to tell you her pirate joke: "Why wouldn't they let the pirate into the movie?.....It was rated argh! You might see her in San Diego so pretend you never heard it before if she tells it to you. Have a great trip!
Love,
Ms. Amy
Ahoy Ben,
Please pass on some birthday wishes to Shaun! We know you are all having a wonderful time in San Diego. What a great tradition your grandpa and grandma are keeping going. Since people from AZ are known as Zonies over in CA, here are some cute slogans about AZ.
Arizona--Bring your camera and your Grandma
Arizona--A Yucca Minute
Arizona--You Never Have to Shovel Sunshine
Arizona--Where you can Have a Dirt Lawn and it's OK
Arizona has the hots for you
Arizona--The Happy Jumping Cholla State
Get your AZ over here
Arizona--It will Thaw Your Chilis
Arizona--Sunny with Scattered Flowers
Arizona--Better than the State You're In (not true in the summer!)
Hug a zonie
Hug your family while you're at it.
Adios Amigos!!!
Love ya!
Dave and Ginger
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