Well coming up with another plan has been a little difficult. Ben doesn't qualify for any studies at St Jude, Texas Children's, NIH or MD Anderson! But I did get a lead on a compassionate use study at U of F Gainsville - its the same study at MDA that Ben doesn't qualify for at Uof F he would get the treatment of study and we can start as soon as Wednesday hopefully. We are still waiting on a few more hospitals....Duke, Cincinnati Children's and Boston.
So no travel plans yet! Hopefully iron something out htis weekend!
Erin
Pirate Ben
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Ben Sarrat - Pediatric Brain Tumors Wall of Courage
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11 comments:
Erin, we are praying for you all so hard...
Our Julia (KM)sat next to Ben at lunch Wednesday...I asked if they played together at recess and she said he wanted to sit down :-(
I can only imagine what you are going through.
Today, Chloe' brought home the prayer bag from PKG and said it was for Ben. We pray for you each night at dinner anyway.
When I opened the notebook it was filled with prayers for Ben.
"Please bless Ben and help him become well."
"Please help Ben get well and strong."
"Protect Ben and his family. Help Ben get better. Keep him safe."
I guess that says it all; from the mouth of babes. From their lips to His ears...
Since you all are going through so much right now, we check Ben's pirate blog every day, we're going to leave our little gifts on your front porch. I hooked my personal card on Ben's straw people stage. Please don't hesitate to call if I can help you ever. I'm just a minute and a half away 24/7 down the street at 391-0150.
Janel Fielding
Praying faithfully that the Lord opens the exact right doors for your Precious Ben.
Ahoy Ben,
You sure are getting to know your way around the Saints football team and stadium. We wonder why they wouldn't let your mom or Auntie Megan in the dressing room with you...
So are you watching any of the baseball playoff games? Did you know that Andre Ethier from the Dodgers used to go to you mom's church here in Phoenix? He's a bit younger than both your mom and auntie so we don't think he was in CYE with them. Anyway, speaking of baseball, (Can you guess what is coming next???) how about some baseball jokes? =)
Why did Cinderella get kicked off the baseball team?
Because she ran away from the ball!
Why is it so windy at Candlestick Park?
Because of all the Giant Fans!
What do you get when you cross a tree with a baseball player?
Babe Root!
Hope these made you smile!
Adios amigos!
Love ya!
Dave & Ginger
Just wanted to let you know we are thinking and praying for all of you. May God guide you to the right treatment plan for Ben.
Love and Prayers,
Cindy Kitchen
It's time for a vacation.... and any of those cities sound good to me!!!
Love you guys,
Ms. Mel and the gang
My family and friends continue to pray for Ben and your family. May God bless you with the peace that only He can give. Doris Gage
Erin,
We are praying that the perfect treatment option opens up before your eyes.
We love you, Ben! Geaux Saints!
Darren
May God guide you in the right direction! (((HUGS))) We love you guys!
Love and Prayers,
Hank, Melanie & Kale
Erin,
Ben couldn't have asked for a better mommy. You have our prayers and support. We love you all. Tell lil'Ben that Pizza Joe says hi.
Love,
Joe and Amanda
no words...just lots of prayers for all of you fromthe Shelley family! ANd...LilBen...Why did the cookie go to the doctor's...beacause it was feeling crummy!...ha ha
Knock Knock...who's there?
Dewey....Dewey who?
Do we have to keep telling jokes all night!!!
i have heard of a place in mexico..... check out
www.oasisofhope.com
they use alternative and traditional cancer treatments...maybe they could help. just a thought.
Blessings.
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