Hey everyone,
Just wanted to give you all an update on what is going on here....
Ben is improving everyday. His walking is much better than 3 weeks ago, his eye is starting to move again, and he is very talkative again. We are weaning him off his steroids and are hopeful that he will start loosing some of the 30 lbs he has gained in the last 3 months - that will really make him feel better! We head to MD Anderson next week for an MRI on Wednesday, we aren't real nervous about this one, he seems to be improving clinically and thats what we really care about - as far as we are concerned the tumor can stay there forever as long as clinically he is "normal"!
We would like you all to keep another little boy from here in New Orleans (well really Belle Chase) Michael in your prayers. He was diagnosed two weeks ago with DIPG just like Ben. He has gone to St Jude for treatment, but I have spoken with his mom and I hope she knows we are here for her anytime. So everyone please keep Michael in your prayers as his journey has just begun!
Just in case you all haven't realised it today is the ONE YEAR ANNIVERSARY of Ben's diagnosis! One year ago today our world was turned upside down with the news that Ben had DIPG (inoperable cancer in the brain stem) and that they estimated he had 6 - 8 months to live. So one year latter Ben is doing good. We have had a few rough days especially over the last few months, but all in all we have been truly blessed with how well Ben has done. He is doing great at school and we have more fun than I thought was possible! He is one tough little kid!
Please remember all our DIPG kids and all cancer kids. These are some of the most amazing people I have ever met and had to over come more in their short lives than anyone should have to.
Much love and we will let you all know how the MRI goes.
Erin & Family
Pirate Ben
Join Pirate Ben's Crew!! Click Here: Visit Team Unite today to see how YOU can help CONQUER CHILDHOOD CANCER!
Ben Sarrat - Pediatric Brain Tumors Wall of Courage
Special thanks to Heide Randall for including Ben in her amazing awarenss campaign! Click on Ben's picture to take you to her site.
10 comments:
What a miraculous year. You have all been such an inspiration. We always love to hear good Ben news.... you are all in our prayers.
What a GREAT family!
Beth Nazar
Ahoy Ben,
Your mom sounds like she's in a pretty good mood these days. I wonder if it's all the jokes we share...It's almost Thanksgiving so how about some jokes on that?
When does Christmas come before Thanksgiving?
In the dictionary!!!
Why did the Pilgrims' pants always fall down?
Because they wore their belt buckle on their hat!
Well that's about it for jokes today.
Adios amigos!
Much love,
Dave and Ginger
Thanks for for the update Erin. You and your family are in my thoughts and prayers.
The brave pirate Ben Sarrat is strong! The brave pirate Ben Sarrat has a brave family. We pray for the brave pirate Ben as often as we pray for our own family.
Mark and Doris Gage, Virginia
I'm so happy to hear that Ben is getting stronger and able to do more on his own! he's one tough cookie!
erin & adam
Hey Guys,
Just read your update! Glad to hear Ben is getting stronger and having fun. He is one brave lil pirate who is blessed with wonderful parents. Take care and keep having fun!!
Love and Prayers,
Cindy and Anna
Hi Erin, I am thrilled to see good news on the blog. I think St Anne is listening to us Grandmas. We will continue with the prayers and look to see even better news next week! Love to All of You !
Lynn
What a blessing it is to read this update. My family is praying, faithfully, that the Lord completely heal your Precious Ben and his friend, Kale, and that these two beautiful children live long, extraordinary lives filled with great happiness.
Thank you for the update. What great news, but than we don't expect anything but great news! You are an amazing family and are loved more than you could know!! I've been praying for Michael and pray that he does as well as Ben! Looking forward to the results of the MRI on Wed. You'll be in my prayers!! Much love and many prayers. Mrs. Rita XXXXOOOO
Hi there,
I was introduced to your blog by my sister, and we tried to send Ben a Christmas gift, but Amazon.com bounced it back. The messagei got is copied below. Is there any way you can collect this, or if it is too much trouble given everything else going on in your life, I will have Amazon return it, so as not to bother you guys.
Your Amazon.com order (#104-1025688-0540267)
We're writing about the order you placed on December 08 2009 (Order# 104-1025688-0540267).
USPS was unable to leave the package at your delivery address as per their delivery policies. The package will be available for pick up at your local post office. Please visit http://www.usps.com and click "Locate a Post Office" to find contact information for your local post office or call 1 800 ASK USPS.
Wishing you and your family all the very best for the holiday season.
Post a Comment