Hey Everyone,
Well we have decide on a new treatment plan for Ben to fight the growing tumors. He has done really well since we started on the steroids after learning of progression, gaining weight quickly but also no symptoms right now! So hopefully after this first dose of new chemo we can back down on the steroids before he completely eats us out of house and home. Tomorrow morning Ben and I check into Children's Hospital. They will access his new port - so that means no IVs in the arm YEAH! He will get his first new chemo and then some fluids, then 6 hours later they will give him his second new chemo this one originally was supposed to be split into 5 doses and be administered over the course of a week while admitted. Recently the protocol has been modified for brain tumor cases and they give the entire dose at once. If Ben tolerates it well we will probably be able to go home Tuesday night or Wednesday morning. So please pray for Ben through out the day tomorrow that his little body can handle all the meds we are going to throw at it!
While we get admitted tomorrow daddy is going to St Andrew's for Kindergarten orientation!!! Ben is very excited about starting Kindergarten next Monday. We are hopeful he will handle the switch to the new school along with this new chemo regiment. Ben will be going for chemo infusions every other week - so he will be missing a little school pretty routinely. But as smart as Ben is there are no worries that he will fall behind. Besides he's trying to talk Dr Velez into doing his chemo at school so he doesn't miss it - I'm pretty sure he's not winning this one, he usually gets Dr Velez to do what he wants but this one probably not going to happen!
We will try to post tomorrow to let you all know how he is doing.
Erin
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5 comments:
Ben:
What a big week you have ahead of you. Chemo with no iv's and kindergarten. I sure hope it ends up being a great week. Good luck!
Beth Nazar
Hey Guys,
Sounds like a busy week. We will be thinking and praying for Ben tomorrow. Praying for everything to go smooth sailing, and that you are able to get out quick and head to Kindergarten. Best of luck.
Lots of love and prayers,
Cndy and Anna
WOW...that is a lot going on for you all! Good luck to Ben with all of the meds. I know that geting to Kindergarten is a high priority for him so he will do whatever it takes to help himself start the school year ASAP. We send our love and best wishes Erin.
Love from the Yarnall family
Hi Ben,
Grandma sends her love and prayers. I wish I could be with you but you have grandpa, along with mom, dad and Shaun so I know you are in good hands. I love you little guy. I will see you soon. My prayers and love are with you tomorrow.
Love Grandma.
Hey Ben -
It was so good to see you over the weekend! I had so much fun playing checkers (I'm sure I'll win next time!!) and chutes and ladders. I'm missing you already! Can't wait to hear about Kindergarten next week. I'm thinking of you today!! Love, Aunt Robyn
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