Today marks one year since ^Lil Ben^ passed away. Life is different now but we carry on. Erin is loving teaching at St. Andrews. Big Ben is still working away at the Renaissance Arts Hotel, and Shaun is Shaun. He will be leaving Brighter Horizon's Day Care after summer camp to go to Kindergarten at St. Andrew's. Hopefully he will have Mrs. Williams like Ben did.
Kind of fitting but Big Ben brought home the new trailer BBQ today to use for pediatric cancer fundraisers. A huge thank you to Kieth Faucheux of Faucheux's welding in Belle Chasse for biulding this over the last few months. Kieth also built Lil Ben's wheel chair ramps so we could get Ben in and out of the house easier. It will make it's public debut at Hogs For The Cause this year on March 26 at City Park.
Friday, February 25, 2011
Saturday, December 4, 2010
Friday, November 12, 2010
2 Years
Today makes 2 years since our life changed forever. Ben fought the best fight he could for 15 1/2 months. Now we try and carry on his legacy. Big Ben is building a bbq pit to take to fundraisers, Erin is loving St.Andrews, and Shaun is Shaun.
We all hope one day no families have to hear what we heard 2 years ago today but we will continue to fight for Ben's legacy.
We all hope one day no families have to hear what we heard 2 years ago today but we will continue to fight for Ben's legacy.
Saturday, July 3, 2010
Still Here
We are still here for everyone wondering. We have been trying to find our new life now without Ben. Shaun is doing well, and Erin and I are both back hard at work all of the time. Going through what we went through puts a new prospective on our lives now, so things are some what different. Erin has been very active through different Internet groups for DIPG families. I prefer to stay in the background most of the time.
Erin has accepted a new job. She will be teaching math and science to 6th grade students at St. Andrew the Apostle School near our house. Ben went to St. Andrew's as much as he could for kindergarten. I know it was difficult for the other kids and parents when they learned about Ben's condition, but they were a wonderful community to join. Mrs. Williams will always hold a special place in our hearts for the warmth she showed, us knowing she was welcoming a dieing child and his family.
Erin's dad had Aortic Valve replacement surgery the other day and is doing very well, so we are grateful for that.
Thanks for checking on us.
Much love
The Sarrat Family
Erin has accepted a new job. She will be teaching math and science to 6th grade students at St. Andrew the Apostle School near our house. Ben went to St. Andrew's as much as he could for kindergarten. I know it was difficult for the other kids and parents when they learned about Ben's condition, but they were a wonderful community to join. Mrs. Williams will always hold a special place in our hearts for the warmth she showed, us knowing she was welcoming a dieing child and his family.
Erin's dad had Aortic Valve replacement surgery the other day and is doing very well, so we are grateful for that.
Thanks for checking on us.
Much love
The Sarrat Family
Thursday, April 15, 2010
CureSearch Walk
Hey Everyone
May1st will be the first ever New Orleans CureSearch walk at Audubon Park! It will be great fun and its a great cause. Ben will have a team walking...Pirate Ben Sarrat Jr Team! If you would like to walk please register on line and come on out May 1st!!! If you aren't local you can sponsor Ben's team or you can be a virtual walker! Here is the link for the walk
Click on the walks section, select the New Orleans walk, and then choose Team Pirate Ben Sarrat Jr!!
We are doing well, well as well as can be expected. We have good days and bad days but mostly good. Shaun had a rough day the other day he was very angry with me for not going to bring Ben home. We talked for about an hour and then he said "Mom I'm not listening to you anymore I will just get Superman to bring Ben back" and that was the end of that!
Shaun is doing great at T-ball ( he's on the team Ben would have been on) he's a little young for the team, but he is doing great.
Hope everyone is enjoying all the nice weather!
Love to all
Erin
May1st will be the first ever New Orleans CureSearch walk at Audubon Park! It will be great fun and its a great cause. Ben will have a team walking...Pirate Ben Sarrat Jr Team! If you would like to walk please register on line and come on out May 1st!!! If you aren't local you can sponsor Ben's team or you can be a virtual walker! Here is the link for the walk
Click on the walks section, select the New Orleans walk, and then choose Team Pirate Ben Sarrat Jr!!
We are doing well, well as well as can be expected. We have good days and bad days but mostly good. Shaun had a rough day the other day he was very angry with me for not going to bring Ben home. We talked for about an hour and then he said "Mom I'm not listening to you anymore I will just get Superman to bring Ben back" and that was the end of that!
Shaun is doing great at T-ball ( he's on the team Ben would have been on) he's a little young for the team, but he is doing great.
Hope everyone is enjoying all the nice weather!
Love to all
Erin
Wednesday, March 31, 2010
Phoenix Memorial Service for Lil Ben
Hello All-
We know Ben has touched lives across the world, but the community in Phoenix has been especially strong in supporting Grandpa and Grandma O'Brien. They would like to take the opportunity to share in Pirate Ben's memory through a memorial service with all of you. The details are as follows:
Lil Ben's Memorial Mass
St Gregory's Catholic Church
18th Avenue & Osborn
Friday April 9, 2010
5 p.m. Mass
Light dinner to follow immediately after Mass in Gordon Hall
Thank you once again for all the love and support you have shown to us all throughout these months.
Lots of love, Aunt Mego
Monday, March 22, 2010
Angel Jacob
Well its been 3 weeks since Ben's funeral. I keep meaning to post it just never happens. Its been a busy 3 weeks..
Ben and I went back to work full time on the 7th, nice to be busy but that 5:45 alarm clock is tough to get used to again!
Hogs for the Cause was a HUGE success far exceeding the $20,000.00 goal! We are so excited for them, they really pulled off a great fundraiser for DIPG. And next year is already shaping up to be bigger and better. Lots more teams interested. I plan on helping them out more next year and hopefully get the message of Childhood Cancer and DIPG more of a focus - we've got the people coming now we need to educate them.
We went to Michael Reason's Golf Tournament Fund Raiser. We got to spend a lot of time with Michael and his family. And the next day we all rode together with Chris Roberts in the Irish/Italian parade in Metairie! It was a lot of fun.
Tomorrow I will be flying up to Cincinnati, OH for Jacob's Celebration of Life Ceremony. 21 days ago Jacob was here, he spoke at Ben's service, and made sure not one person made it out of that church without having a good cry! He was such a special guy. I was so upset to hear he had passed Sunday morning. But I know Ben was definitely with him. Now the mischief those two get into may get them booted out of heaven!
Another local girl Arianna lost her battle last night as well. And Friday another little 6 year old girl was diagnosed at Children's hospital.
I will try and post a few pics from Hogs for the Cause. For those of you who don't know yet Ben has a team walking in the May 1st CureSearch walk here in New Orleans. If you would like to join his team and walk or just make a donation go to www.curesearch.org click on the New Orleans walk and chose Pirate Ben Sarrat Jr's Team! We (Ben Sr , Shaun and I ) wont be walking this year, we will be at a DIPG walk in Nashville, TN with our DIPG family. But I am helping with the committee planning the walk and I am hopeful we will change the date for next year so we can participate.
Well I'm off to bed...early flight tomorrow. Much love to all.
Erin
Ben and I went back to work full time on the 7th, nice to be busy but that 5:45 alarm clock is tough to get used to again!
Hogs for the Cause was a HUGE success far exceeding the $20,000.00 goal! We are so excited for them, they really pulled off a great fundraiser for DIPG. And next year is already shaping up to be bigger and better. Lots more teams interested. I plan on helping them out more next year and hopefully get the message of Childhood Cancer and DIPG more of a focus - we've got the people coming now we need to educate them.
We went to Michael Reason's Golf Tournament Fund Raiser. We got to spend a lot of time with Michael and his family. And the next day we all rode together with Chris Roberts in the Irish/Italian parade in Metairie! It was a lot of fun.
Tomorrow I will be flying up to Cincinnati, OH for Jacob's Celebration of Life Ceremony. 21 days ago Jacob was here, he spoke at Ben's service, and made sure not one person made it out of that church without having a good cry! He was such a special guy. I was so upset to hear he had passed Sunday morning. But I know Ben was definitely with him. Now the mischief those two get into may get them booted out of heaven!
Another local girl Arianna lost her battle last night as well. And Friday another little 6 year old girl was diagnosed at Children's hospital.
I will try and post a few pics from Hogs for the Cause. For those of you who don't know yet Ben has a team walking in the May 1st CureSearch walk here in New Orleans. If you would like to join his team and walk or just make a donation go to www.curesearch.org click on the New Orleans walk and chose Pirate Ben Sarrat Jr's Team! We (Ben Sr , Shaun and I ) wont be walking this year, we will be at a DIPG walk in Nashville, TN with our DIPG family. But I am helping with the committee planning the walk and I am hopeful we will change the date for next year so we can participate.
Well I'm off to bed...early flight tomorrow. Much love to all.
Erin
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