Sunday, March 1, 2009

Ben's week

Ben had a great week.

It was a fun Mardi Gras, and another great soccer game on Friday night. Go Orange Tigers!! Ben is looking forward to a fun week at school. Its the beginning of "MARCH MADNESS" no not basketball - Brighter Horizons and Audubon has teamed up and gone field trip crazy!!! Every Wednesday this month Ben's class will be going to one of the Audubon facilities for a super fun field trip. This week is the Insectarium!! Ben is soooo excited he loves the Insectarium. But hey what five year old boy wouldn't love a place thats all about bugs!! Mommy is pretty excited because she gets to go on all the field trips too!

Great news the United States government has finally decided that mommy is not a threat to national security and has FINALLY renewed her passport - now we can book Ben's Make a Wish Disney Cruise! No dates yet but it should be soon. Ben is very excited about "going sailing with Mickey"!!

Ben Sr and I want to say Thank You again to our wonderful friends, family and community. I feel like we can't say thank you enough. Ben was so excited to see you all out at his soccer game - when the coaches finally got all the teams situated on the field the other night we were all heading over to the field where Ben was playing and as our "herd" crossed the field Ben proudly announced "hey look its my cheering section!" with the big cheesy grin he has - he was soooo proud to have so many people there to watch him play!! We also want to say thank you to all the Sacred Heart and Stuart Hall families for all the wonderful meals over the past three months, one less thing to worry about and more time with the boys, so important right now! We have also recently learned that Ben's Cancer Research Benefit Fund will be the recipient of this years "Hogs for the Cause" fundraiser at the end of this month. For more information about the fundraiser go to http://www.hogsforthecause.org/index.jsp Our community has been so supportive. I can't image how other families going through a similar fight does it without YOU!

Now for our decision - I know you all have been wanting to know what our next step is, thank you for not pressing us for the answer it has taken us a while to come to our decision. After Ben's MRI his oncologist told us she thought it was time for us to move to another hospital that could provide us with a more aggressive therapy as the tumor had not shrunk as much as she had hoped. Well after tons of research and hours of talking to doctors all over the country, the consensus is that at this time there is no other treatment recommended. Until Ben starts to show disease progression (the tumor getting bigger) none of the doctors recommend any of the other current treatments. We have started Ben on a maintenance dose of the oral chemotherapy. So we will stay here and continue working with Dr Velez, who Ben loves, and monitor him very closely and pray there is a break through VERY SOON!

So its back to having fun for us!! All fun all the time - thats our mantra! Aunt Mego is coming for a visit very soon, very exciting. We are planning a trip to Phoenix as soon as we get our Make A Wish trip dates. And Big Ben & Lil' Ben are planning an offshore fishing trip out of Panama City, Fl - they are still deciding if Mommy and Shaun are invited, it may just be a big boys trip! Ben wants to spend some time at the beach this summer in San Diego (I think he wants another GIANT Pizza), we also may be spending this Easter at the mountain house in North Carolina with the cousins.

Thats all for now! We have to go for a Jeep ride around the neighborhood!

Love always
The Sarrat Family

12 comments:

Anonymous said...

Ben,

I had so much fun at your soccer game, and I can't wait until the next one! Go Orange Tigers! It's so cool that you get to go on a cruise with Mickey. You better make sure Shaunee doesn't try to jump ship! It sounds like you have a lot of fun things coming up, little man. I love you, and Rock On!

Anonymous said...

Hey buddy,

I had a great time at your soccer game the other night. I think we could of came up with a better name other than the Tigers but hey at least your Tigers can win a game. haha. I'm so excited about the Insecterium this week. We are going to have a blast! I love you man. See you at school tomorrow.

Anonymous said...

Hi there Ben, it's been a VERY LONG time since I've seen you. I'm looking forward to school tomorrow!!!!! I might have a trick or two up my sleeve! March sounds like it's going to be exciting with your class mates and than sailing with Mickey, and fishing with dad!! WOW!!! It just doesn't get any better than that!
Love you bunches and bunches
Mrs. Rita

Erin and Big Ben,
It's wonderful that you don't have to take Ben away from his home, friends and school. We will continue to pray, in faith, for a break through! ALL FUN ALL THE TIME!!!!!! God bless.
Much love and many prayers,
Rita

Anonymous said...

GGGOOOOOO ORANGE!!!

Patrick & I had a great time being in your cheering section Friday night. That was a blast!!

Looks like you guys are in for lots of fun this month. Hope I can play hooky from work and play with you guys a little.

Luv ya!
Patrick & Patrick's Mom

Anonymous said...

heyy ben! i had a good time at your game the other night too! I have to say ....you definitly have the biggest cheering section! and i am ready for the next one! Man, with all of these field trips, soccer, and a disney cruise you are gonna be one busy little boy! but there isnt anything wrong with having some fun! Well i will see you guys later at school! love you all!

Uncle Peter and Aunt Robyn said...

Hey Ben -

I hope soccer was fun last week - sounds like you had a HUGE cheering section!! Would love to see you on the field, but since I'm all the way back in Maryland, I'll settle for a picture! Can't wait to hear all about the insectarium and the other fun field trips this month with your class. Have FUN!! Love, Aunt Robyn

Anonymous said...

Hey Ben,
If your cheering squad gets any bigger Grandpa and I will be ab.
le to hear them out here in Phoenix,
We wish we could see you on the field, I bet your are moving all the time. Have fun at your next game. Maybe Aunt Mego will get to see you. We love you and miss you.
Take care of Shaun and teach him all you know about soccer.
Love Grandma and Grandpa

Anonymous said...

Ahoy Ben,

Glad you're enjoying soccer so much and you're enjoying all of your fans!

How cool that your Aunt Mego is coming for a visit. I'll be your grandma would like to hide in her suitcase and visit you too. =)

We're always glad to hear you're enjoying school!

OK, how about some more school jokes?

Why is the math book so unhappy?
Because it's full of problems!

What language does a billboard speak?
Sign language!

How do you get straight A's?
By using a ruler!

Much love to you bucko!
Adios amigos!
Dave and Ginger

Anonymous said...

I know you've probably researched already many treatment possibilities, but I wanted to pass along two that you may be interested in checking out if you haven't already. The first is "gamma-knife" or stereotactic radiotherapy, which uses very controlled dosage and localization of the x-ray, making it good for preserving surrounding structures etc. The second is called proton therapy, which instead of using x-ray radiation uses accelerated protons to zap cancers. This is a very $$ procedure (of course you can NEVER put a price on human life, but it is I think the most expensive piece of medical equipment out there) and I don't know if it would be possible with the specific type of tumor Ben has, but you can send in file notes from Dr visits, MRI films and labs to the University of Florida Proton Therapy Institute ATTN:Lisa, (put Ben's name somewhere in the header too)fax# 904.588.1301 to have their Dr. evaluate and see if they might be able to help. http://www.floridaproton.org/

*I have no personal connection to the FL center or any Dr.'s there, just so you know. Just wanted to help if I could.

Ashley Baker said...

Hey Guys! I know I haven't contacted you personally, only sent prayers and warm wishes through family. I definitely wanted to let you know that our whole family has been praying so hard for you and Ben. I try to stay updated through the blogspot now. We love you guys and please know that all the family up here in Memphis are praying everyday. Lots of love from the Memphis crew!
The Baker family

Anonymous said...

Hi Ben:

I hope you had fun at the insectarium today. Sophia and Lucas love it. Did you eat any bugs? If you did were they the crunchy fried/ baked kind or the wet/in a sauce kind? If they were wet, you are braver than we are. We only do crunchy bugs.

Anyway, I hope you enjoy the rest of your field trips. My mom helped book them for you guys. She said everyone in the office had fun imagining your school going on so many visits.... you'll be an honorary Audubon employee by the time the month is done.

Keep up the fun. We love reading about your adventures and seeing your happy pictures.


Love,

The Nazars

Anonymous said...

Wow! There are a lot of fun things going on and coming up. We're going to the Insectarium too before we go back North, but I'm chicken and am NOT eating any bugs! Where and when do you play? I'd like to come see you for sure.

I sure like your Leapster. Can't wait till my little granddaughter's old enough for one!

Lots of love,
Megan's Mom, Miss Peg