Thursday, December 31, 2009

UPDATE

Hello Everyone,

As we get closer and closer to 2010 I just wanted to take a few minutes to update everyone on the last week.

We had a great Christmas, quite and fun, lots of family and friends. Ben has been battling a head cold the last week or so and it was settling in his chest, or so we thought. We have been doing breathing treatments all week because he was working hard to breath. This week in clinic we came in for blood work and to check his breathing. We had x-rays and lots of people come and check him out. They ended up admitting him yesterday for observation, respiratory evaluation, and an MRI. So after everything this is what we know...

Ben's tumor is growing again, and it has closed off his third ventricle in his brain, causing a back-up CNS fluid and extra pressure. As a result the doctors feel we need to relieve the pressure surgically. So on Monday Ben will be having surgery to open up his third ventricle, allowing the fluid to circulate again and hopefully relieve some of his systems (mainly the respiratory difficulty). It will be a few days recovery and then we will be able to do radiation again. The type of surgery he will be having is called a Ventriculotomy.

We don't have quite all the details yet, but we will most likely stay inpatient, the surgery will be midday Monday and hopefully Ben will be feeling much better by Wednesday!

So keep us in you prayers. Its nice being up here on 4 West we have made a lot of good friends in the cancer community this year and having them around is helpful. Please remember that these kids are always in need of blood and platelets. And right now there is a shortage here in LA and in TX - people are literally waiting DAYS for blood products. So please stop by your local blood center and donate today - you could be saving a child like Ben!! SO to our anonymous O- donor we say thank you for donating Ben didn't have to wait long for his blood today!!!

I'll try and update over the next few days to keep you all in the loop. And there will for sure be an update Monday night to let you all know how it goes.

Much Love
The Sarrat Family

10 comments:

Anonymous said...

LOVE AND PRAYERS!!
-Tim, Brandy, Kody, Tyson, and Tiki Reisdorff

Janel & Jay Fielding said...

Erin,

Thanks so much for keeping us posted. Jay has been very concerned; he has more medical training than I.

He asked me, just now, to call and check on Ben. Your notes on this blog help us to not intrude when Ben is facing tough challenges. We are all B+ if you need blood for Monday's surgery...otherwise, we'll just donate as normal.

As always, you ALL are in our prayers. Stay strong dear Captain and bring you little one home safely!!

And remember we're just a phone call away for anything you might need...Janel & Jay

the other Ms. Jessica said...

Hey buddy,

I know that I'm a little late, but MERRY CHRISTMAS! I'm sure that Santa brought lots of cool stuff for you and Shaun. Miss you, little man, and good luck on Monday! Love you, and HAPPY NEW YEAR!

The Barons said...

Ahoy Ben,

Happy New Year! Heard you're going to be having a procedure on Monday. How about some jokes to make you chuckle?

Do you know what a cow's favorite holiday is?
Moo Years Day!!!

What's white and goes up?
A confused snowflake!

What do you call an old snowman?
Water!

Please tell your mom that Jeff is engaged. We remember when he was born and we brought him home from the hospital. Your mom and Auntie Mego were there to meet us and had made a huge welcome sign for him.
=0)

Love you!
Adios amigos!
Dave & Ginger

Anonymous said...

Joyous New Year to the brave Pirate Ben and his first mate Shaun and crew! We continue to pray for you.

Your Virginia friends, Mark and Doris Gage

Anonymous said...

Our hearts and love are with you ALL! Please know our prayers continue AND are CONSTANT! If there is ANYthing we can do, (Jimbo will go donate blood this week!) please give a shout out! We love Lil' Ben and are so inspired by you all! Your strrength and his stamina.... UNreal!
PRAYIING, praying, PRAYING!!!!
Jimbo and Lisa Coarsey

Sharon Johnston said...

Thanks for the update. I've been thinking of you guys a lot and wondering how things are going. I am an O-. Just a little short of weight requirement to give blood, but can certainly give blood in an emergency. I've never had them put me on the scales. Ben is always first in my prayers--I'll just amp it up.

Love,
Sharon Johnston

Anonymous said...

Sarrat Family,

Happy New Year or should I say Happy Football Day. Hope it is a good day full of fun and good snacks for Ben!
Love and Prayers,

Cindy and Anna

Anonymous said...

love your guys keep up the good work lil buddy!

love, dari

Anonymous said...

Well, I just wanted to apologize again to Ben for eating too many fingers sandwiches yesterday! I hope you have a great sugar bowl party with lots of chips and ranch dressing! Happy New Year!
Love and Prayers,
Melanie, Hank & Kale