Hello all!
We just returned from meeting with Dr Z (Ben's radiation oncologist). He made his mask and we are all set to start radiation on Thursday. He will go for 10 treatments. Ben's doing good, recovering slowly from the RSV- which as it turns out is much harder on him than brain surgery! His surgery site looks great and he tells everyone he was wounded in a pirate sword fight. He is still getting breathing treatments every few hours around the clock, so mommy is pretty sleepy, Ben sleeps through them but I haven't figured out how to automate the machine to refill itself and switch on and off every four hours, so mommy doesn't sleep through them - oh well its like those first few weeks with a newborn!
We are going to go back to school tomorrow. Ben is up for it and we have scheduled his radiation appointments for afternoon so we can do the morning at school and then go to radiation at lunch and then home to nap before we go get Shaun. We are hopeful radiation will give us the same great results it did last time.
Besides the fact that it is FREEZING in New Orleans (we are still considered the South right??!??) we are doing good, and having fun as always. We will post again soon!
Much Love
Erin
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5 comments:
Hi guys -
Stay warm!! Ben - I hope you have a great week at school and that the radiation goes well (you get to listen to some good tunes, right)! Can't wait to see you before Mardi Gras!! Miss you and love you lots! Aunt Robyn
Ben and Erin
We are so glad that Ben is doing well and will start the radiation soon. Hope all goes well and you Erin can get some sleep really soon. Ya'll take care
Hugs and kisses
John, Chanda and Jeanne-Avery
Dear Brave Pirate Ben,
I met with my friends last night and we all agree that you are the bravest Pirate we've ever heard of. We continue to pray for you and your brave crew.
Doris and Mark Gage, Virginia
Pirate Ben,
Continue to stay strong and well and this fight will be like no other and you will come out the winner!!!!! We are so proud of you and all that you go through every day. here's hoping things will keep looking up for you and that the Saints win on Saturday as well!!
Sharon Williams
Ben, I am so proud of you. You really are the best pirate out there Captain Hook had nothing on you. Keep up the good work. Always praying hard. Much love and respect always.
Annette (angel aimees mom)
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