Ben is an amazing 5 year old boy. He was diagnosed with a Diffuse Intrinsic Pontine Glioma (DIPG)(an inoperable brain tumor) in Nov 08. Ben wants to share his fight with cancer with you, this is his story...
Monday, February 22, 2010
Afternoon
The doctors have called the home health nurses back in now. They will access his port again to draw blood, make giving him fluids easier, and giving him any necessary medication easier. We think he will begin needing pain medication soon.
33 comments:
Anonymous
said...
Praying for peace, comfort and most of all no pain. Love and Prayers, Melanie, Hank and Kale www.caringbridge.org/visit/kalebradford
We are continuing to keep all of you in our prayers! Stay strong in your faith and we are all praying for no pain and complete peace for Ben and the entire family!
still pulling for you "Pirate Ben".love, hugs and blessings, erin call me if you need to 228-234-3604 love ms wendy (mom an angel) www.caringbridge.org/visit/timothylynn
You are all in my thoughts and prayers. I only recently found your blog, but I am inspired and awe-struck by the love, compassion, strength and courage all of you give on a daily basis.
Hey Ben and Family, Ben you are a fighter and such an amazingly strong little boy. You are an inspiration to our whole family. Continue to be strong! You and your family are always in our prayers and thoughts. Reagan and Broc say hello and they miss you.
We would love to come by for a visit to say hello, if you guys are up for it, if not we completely understand. Erin my email is tamara.olivier@yahoo.com, you can email me anytime and if ya'll need anything please let me know.
Dear Sarrat family we are praying for Ben alot.So we hope he can hang in there.I know he had alot of fun at summer camp.I hope he can feel alot better soon.
We know that Little Ben is being watched over now by so many wonderful angels who were blessed to have known him and your wonderful family! Love, the Yarnalls
Keep holding on lil Ben! My name is Brandy Denny Smith and my family and I are in Monterey, CA just south of San Francisco! We are spreading the word about you and your amazing fight! You are SO strong!! I am in the navy and my command and I are trying to organize a fundraiser for St Baldricks and their foundation to battle pediatric cancer! My brother Randall works with your dad and he lets me know how you are from time to time! He says you are the most AWESOME little boy he has ever known! Keep being you buddy! And keep an eye on the mail, we have a post card we bought in San Francisco on the way for your map!! Feel better soon Ben! And Mrs Erin and Mr Ben - you're doing an amazing job! Stay strong and keep God close to your heart! Praying for all of you! If anything is needed (or wanted) from the west coast please let me know! brandy.denny@yahoo.com
Little Ben, Erin, Big Bin and Shaun, i am praying for yall each and every chance i get. Yall are the strongest and most couragious family i have ever had the belssing of knowing. I wish yall peace and comfort threw everything. You trully have changed my life!!!
Pirate Ben, you are truly amazing... I have never had the pleasure and pure joy of meeting you or your family, I live far away in Nebraska. I have been keeping my eye on you since your blog started ;-) you are so strong and such a fighter, I really feel like I know you thanks to your Mom and Aunt keeping the blog up! I have 2 little girls, one is the same age as you - she would surely have a crush on you if we lived closer! May God bless you and your family... keep fighting this fight!
Join Pirate Ben's Crew!! Click Here: Visit Team Unite today to see how YOU can help CONQUER CHILDHOOD CANCER!
Postcard for Ben!!
Ben and his Aunt MegO are trying to collect postcards from everyone who follows his blog. We put them up on a big map in his playroom - he loves finding out where everyone pulling for him lives! Please send postcards to:
Brighter Horizons Pirate Ben and matee's 110 Barriere Rd #A Belle Chasse, LA 70037
Thanks - We'll post pictures of the map soon!
Ben Sarrat - Pediatric Brain Tumors Wall of Courage
Special thanks to Heide Randall for including Ben in her amazing awarenss campaign! Click on Ben's picture to take you to her site.
33 comments:
Praying for peace, comfort and most of all no pain.
Love and Prayers,
Melanie, Hank and Kale
www.caringbridge.org/visit/kalebradford
Erin & Ben,
God blessed you with an amazing son, an amazing love you share with him and amazing strength.
We are all here; holding your hand and praying with you.
The St. Andrew Community
We are continuing to keep all of you in our prayers! Stay strong in your faith and we are all praying for no pain and complete peace for Ben and the entire family!
Yours in Christ,
Graci Thompson and Family
still pulling for you "Pirate Ben".love, hugs and blessings, erin call me if you need to 228-234-3604
love ms wendy
(mom an angel)
www.caringbridge.org/visit/timothylynn
Praying for Ben's miracle.
Your fight, your strength and courage...so admirable, inspirational, and always in my thoughts...
Praying for you Ben. My heart goes out to your family.
Praying for you Ben. My heart goes out to your family.
Ben has shown strength and courage to so many throughout his fight. May God grant you the same for the future. We are praying for you.
Still praying and thinking of you guys each and every minute!! <3
You are all in my thoughts and prayers. I only recently found your blog, but I am inspired and awe-struck by the love, compassion, strength and courage all of you give on a daily basis.
Hey Ben and Family,
Ben you are a fighter and such an amazingly strong little boy. You are an inspiration to our whole family. Continue to be strong! You and your family are always in our prayers and thoughts. Reagan and Broc say hello and they miss you.
Love
The Oliviers
We would love to come by for a visit to say hello, if you guys are up for it, if not we completely understand. Erin my email is tamara.olivier@yahoo.com, you can email me anytime and if ya'll need anything please let me know.
Love
The Oliviers
PRAYING for your family.
Love,
The Grosch Family
Hi Lil Ben, Erin, And Big Ben,
Please know that the Xavier Prep Prayer Chain continues to hold all of you in prayer! May God bless you with continued courage and peace.
Blessings,
Lisa Pomraning
Xavier Mothers' Guild
Our thoughts and prayers are with you and your family, Ben.
Love, The Illg's
Dear Sarrat family we are praying for Ben alot.So we hope he can hang in there.I know he had alot of fun at summer camp.I hope he can feel alot better soon.
Our thoughts, prayers and Love are with you and your family, Ben.
Love, The Moreno's
We know that Little Ben is being watched over now by so many wonderful angels who were blessed to have known him and your wonderful family!
Love, the Yarnalls
Keep holding on lil Ben! My name is Brandy Denny Smith and my family and I are in Monterey, CA just south of San Francisco! We are spreading the word about you and your amazing fight! You are SO strong!! I am in the navy and my command and I are trying to organize a fundraiser for St Baldricks and their foundation to battle pediatric cancer! My brother Randall works with your dad and he lets me know how you are from time to time! He says you are the most AWESOME little boy he has ever known! Keep being you buddy! And keep an eye on the mail, we have a post card we bought in San Francisco on the way for your map!! Feel better soon Ben! And Mrs Erin and Mr Ben - you're doing an amazing job! Stay strong and keep God close to your heart! Praying for all of you! If anything is needed (or wanted) from the west coast please let me know! brandy.denny@yahoo.com
Little Ben, Erin, Big Bin and Shaun, i am praying for yall each and every chance i get. Yall are the strongest and most couragious family i have ever had the belssing of knowing. I wish yall peace and comfort threw everything. You trully have changed my life!!!
Pirate Ben, you are truly amazing... I have never had the pleasure and pure joy of meeting you or your family, I live far away in Nebraska. I have been keeping my eye on you since your blog started ;-) you are so strong and such a fighter, I really feel like I know you thanks to your Mom and Aunt keeping the blog up! I have 2 little girls, one is the same age as you - she would surely have a crush on you if we lived closer! May God bless you and your family... keep fighting this fight!
praying as hard as i can, and sending all my love.
with hope,
dari
Pirate Ben and Family,
Meg and family are thinking of you so much.
The Murdens
To Ben, one of the cutest little boys I have ever met. You grew up to be such a brave pirate. I am so proud of you.
You are all in my prayers.
Beth Nazar
Praying for you and your family.
Sarrats & O'Briens,
We are sending all our love and strength and praying that Little Ben is pain free.
Shannon & Jereme
Prayers and love to you all.
Ahoy Ben,
Want to hear some Irish humor?
What is out on the lawn all summer and is Irish?
Paddy O'Furniture
What do you call a fake stone in Ireland?
A sham rock
Why do frogs like St. Patrick's Day?
Because they're always wearing green
May the blessings of St. Patrick be with you!
Adios amigos!
Much love and many prayers to you and your family,
Dave & Ginger
Hello, you site is very funny he told me to cheer up .. Merry Christmas.
Merry Christmas and Happy New Year, may all your wishes come true!
Merry Christmas and Happy New Year, may all your wishes come true!
It`s really nice article. Thank u a lot
Post a Comment