Hello All
It was kind of a rough night. Ben spiked a fever in the middle of his second transfusion, so we had to stop it, he can't swallow anymore so he can't take Tylenol, so the only way to bring his fever down was cold compresses. But after the blood was tested and they checked his blood again we were able to start the transfusion again with a fresh bag, so he has gotten two and a half transfusions so far. They are going to do another transfusion here shortly. He is on morphine for pain and he is unresponsive. Every once in a while he will open his eyes and look around and sometimes answer a question with his eyes or a slight nod. But he appears to be resting comfortably.
Thank you for all the sweet messages, and support, we really appreciate it.
Erin
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Join Pirate Ben's Crew!! Click Here: Visit Team Unite today to see how YOU can help CONQUER CHILDHOOD CANCER!
Special thanks to Heide Randall for including Ben in her amazing awarenss campaign! Click on Ben's picture to take you to her site.
Ben is an amazing 5 year old boy. He was diagnosed with a Diffuse Intrinsic Pontine Glioma (DIPG)(an inoperable brain tumor) in Nov 08. Ben wants to share his fight with cancer with you, this is his story...
Pirate Ben
Join Pirate Ben's Crew!! Click Here: Visit Team Unite today to see how YOU can help CONQUER CHILDHOOD CANCER!
Postcard for Ben!!
Ben and his Aunt MegO are trying to collect postcards from everyone who follows his blog. We put them up on a big map in his playroom - he loves finding out where everyone pulling for him lives! Please send postcards to:
Brighter Horizons
Pirate Ben and matee's
110 Barriere Rd #A
Belle Chasse, LA 70037
Thanks - We'll post pictures of the map soon!
Brighter Horizons
Pirate Ben and matee's
110 Barriere Rd #A
Belle Chasse, LA 70037
Thanks - We'll post pictures of the map soon!
Ben Sarrat - Pediatric Brain Tumors Wall of Courage
Special thanks to Heide Randall for including Ben in her amazing awarenss campaign! Click on Ben's picture to take you to her site.
Ben's Joke of the Day
- Q: Why did the hippopotamus sit on the fence?
- A: Because he wanted to break the fence down!
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47 comments:
SWEET BEN YOUR SUCH AN INSPIRATION TO EVERYONE! YOU ARE IN MY HEART THOUGHTS AND PRAYERS EVERYDAY YOUR SUCH A LITTLE FIGHTER! MAY GOD BE WITH YOU AND YOUR FAMILY TODAY AND ALWAYS!!
Lord, I pray for Ben, your Word says I should pray for his healing. I believe you hear this earnest prayer from my heart and that it is powerful because of your promise. I have faith in you to heal Ben, but I also trust in the plan you have for his life. Lord, I don't always understand your ways, and why Ben has to suffer, but I trust you. I ask that you look with mercy and grace toward Ben and his family. Nourish their spirit and soul in this time of suffering and comfort them with your presence. Let my Pirate Ben know you are there with him through this difficulty.
Love and Prayers,
Melanie, Hank & Kale
www.caringbridge.org/visit/kalebradford
Do y'all need blood given? Erin let me know if you need this or anything! 287-5280 Wendy
praying for you all and sending massive amount of love and hugs your way.
all my love,
dari
Last night the Vincentians remembered and prayed for Ben and all of you. We had a very large turnout so we pushed as many prayers as possible. Several of us are following the blog. God bless you for keeping us informed.
Sending thoughts to Phoenix Grandma and Grandpa also.
You and your family are in our constant prayers. We love you all.
Love Blake, Camillia, Samantha, Michelle and Chris
Rosary last night for "lil Ben and all the family....with the St. Greg's community of family and friends...prayer for God's peace to Lil Ben and strength and courage to all of you...Erin and Ben, you are my heroes. I love you as my own and I keep you in my prayers constantly...love to all...Please give Pat and Judy a huge hug from me...love, Mona
My prayer is for peace and healing and that you all are filled with God's Love and Grace to get you through this most difficult journey. May you continue to be showered with God's love and faith that He will heal of you as is His Will. May God Bless You all!!!
Sharon Williams
Lil Ben, you are in my prayers. You are such a fighter. I can not event begin to imagine how strong you and your family are in this difficult time.
Erin & Ben - If blood is needed, please let us know where we should donate.
Bless you guys!
Rachel
My thoughts and prayers are with you Ben and family. Katie attends St. Andrew in preK and has said her own special prayers for Ben. We love you and are so proud of you. Your strong spirit has kept you with us! Bless you Ben and family. If there is anything at all that you need now or later, please do not hesitate to call.
Melanie & Katie Russo
621-2245
God be with you!! May he cover you with his peace and comfort. And take all pain away from our little pirate.
Love you XXXXXOOOO
Ms. Rita
Pirate Ben and your whole family are in our thoughts and prayers.
Melissa, Chris and Alex Richier
Hey,
Hoping that as you lay with him you are able to doze off for a bit of rest.
Give him kisses from all of us, if you would.
Keep doing what you have done so well for six years - love him.
jim, di, nikki & matthew
Continued prayers for our Pirate Ben and his entire family. We love ya'll!
Mike, Michelle, Patrick and Christian
I love you, Ben!
Dear Pirate Ben
You and your family are in the thoughts and prayers of everyone here at the Insectarium. We love you guys!
The Bug Krewe
I have been thing and praying for all of ya'll. I am so gratefull that I had the privilege to know Ben and you. I pray that God will so his mercy and take away all of his pain and wipe all your tears, and help you to be strong. If there is anything I can do please let me know.
Love and prayers,
Ms. Nancy ( Kale's grandma)
May he continue to rest comfortably as he helps you all find peace. Ben's journey has impacted so many people thanks to his loving family. Erin and Ben, thanks for helping us all be a part of this amazing child's life!
Continued Love from the Yarnalls
Little Ben is an inspiration to us all. I will continue to Pray for peace and comfort. You all are continuously in my thoughts and prayers.
Love,
Amy
Continuing to send the love and the prayers from us. We love you and hope that you are resting peacefully! Love, Kelli, Mike, Madi and Mikie
Continued thoughts and prayers for Ben. Wishing for no pain and immense peace.
Meg and the rest of the Murden family
Dear Pirate Ben, Erin and family,
You are all in our thoughts and prayers. Please let us know if there is anything at all that we can do... Your friends at Info Central (Zoo)
All of us have Ben and all of his family in our prayers. I know all the nurses couldn't meet Ben, but the one that did is very lucky. We will continue to pray for all of ya'll.
Praying for your family and for no pain for Ben. This is such a difficult time. May your family have peace.
We continue to hold your family close and wish for comfort and peace for lil' Ben. He is the strongest little guy I know.
Holding you in the light.
Love, Jill and Jesse
In times like these, we yearn for answers that seem to never come. The answers we do receive never come close to mending our hearts. Truth is, mere words we use here on earth cannot convey any answers to these questions. There are no earthly words to communicate how his plan will unfold for us; but indeed, there is a plan…for each and every one of us. The light in this darkness is the one and only answer he has given us…Faith. With the unconditional love and support of family, friends and loved ones, we find our strength and are reminded of our need to have faith in Him no matter how incomprehensible it seems here on earth.
Ben’s journey is not in vain as well as so many other children like Ben who have taken this path we cannot explain. Our souls are lifted by Ben’s strength and will to fight. An honorable fight he has so gloriously faced with the innocent spirit of a child we have all come to love, adore, admire and root for.
We pray for your little Ben.
We pray for Ben, Erin and Shaun. We pray for your families and friends to help you through this incredible time of need.
Ben is part of our hearts. Thank you for sharing his and your journey with all of us as we come together and continue to ask God to grace your precious Ben with His comfort and peace.
I am glad to hear he is comfortable, I am thinking of you all the time and I am praying for Ben's comfort and the comfort of all of you there with Ben.
Love you cousin Julie
Pirate Ben you are in our hearts and prayers!!!
God Bless.
Ben and Erin,
Thinking and praying for all of you...
Cindy and Anna
I don't know you or your family but I am holding your thoughts and your family close to my heart. I am praying throughout the days for Ben and your family. All of you are fighters and I lookup to you and your braveness. Most of all, I pray for peace for Ben and his family and know that you have God and a whole community behind you.
Ben, You do not know me and I do not know you even if I have read so much about you. You are an amazing little boy and such a fighter. I pray and think about you and your mon, dad and little brother everyday.
Lots of hugs and kisses to you.
Your family is in my thoughts and prayers.
Love, Shannel
Sweetest Ben: God has been placing you on my mind and prayers so much. My heart is so blessed because I know you. Ahh, to even imagine how much love it is that your parents have for you, and you for them.....my heart bursts just thinking about it... beautiful, precious, magnificent love .... that nothing can take away.
My prayer is that you and the many who adore you are immersed in love today.
Dear BEN,My brother and I go to ST. Andrews with you. You are my brother's age but I am older and in the second grade. We think about you and pray for you everyday.We went to YOUR birthday party.
Hears a joke I just made up: why did the bear get happy when his friends ate honey?
because they stuck around all day!!!!
love: Anna Patricia
P.S. I am in MRS. Rodriguez's class
Hi Ben
My sister is doing this for me because I don't know how to type too good. (I am telling her what to say)
Thank you for inviting me to your birthday party. I wish you would feel better. I pray for you everyday. THe magic man at your party was cool.
Love: Dean
I am in Mrs. Novak's class.
Our thoughts and prayers are with you and your family at this most difficult time. We will keep the lil pirate in our prayers.
Roy, Laura, Madison, Shelby and Ava DeSalvo
Dear Ben and family,
We are all thinking of you in Phoenix, and praying that you find peace. You are such a loving family who has always done so much for others, and the grace you show through this tough, tough journey is amazing. love to you all- Judy and Pat, we are thinking of you.
Hi Ben, hi O'Brien family. Pedro and I are thinking about you guys and sending lots of love your way. We hope you all are taking good care of each other, just as you are taking the very best care of pirate Ben.
xoxo,
Angela & Pedro
Hi Ben! You probably don't know us but we go to St. Andrew with you. We want to just let you know that we are praying for you and your family each and every day. We are so glad that you are a part of the St. Andrew family. Please keep fighting and hope you feel better soon.
Your friends,
Brenden (3F) & Presten (1CH) Berggren
Erin and Ben
I am glad to hear that you are resting peacefully. May the many thoughts and prayers give you comfort. My family and I continue to follow you daily and think about all of you throughout the day. Our many prayers are with you.
Ms. Ana
(the wheelchair and walker lady)
Sweetest Little Ben,
We are filled with thoughts of you and your family each day and asking God to bless you with peace and relieve you of your pain and discomfort. We pray for you Erin, Ben and Shaun that you are greatly comforted by the love of God, family and friends who surround you. Ben, you are an amazing little boy and your continued courageous journey has touched us all so deeply.
God Bless you Little Pirate Ben.
Love,
The Richoux's
(Mark, Cindy, Connor & Ethan)
Pirate Ben,
May God continue to bless you and your family.
Love,
Kayla KW
Pirate Ben...
You are in our hearts, thoughts and prayers.
We pray for you every night and think of you throughout the day. You're always on our minds...
With lots of love to you & your family,
The Eden Family
(Travis, Beverly,
Brennan, Cameron & Quinn)
Ben,
We love you so much. Thank you for being such an inspiration to us all.
Darren Pollok
Ben offered so much to all who met him. You couldn't help but smile to think of him and let your heart lighten up. His memory will be a treaured gift.
I am really, truly sorry.
Ben is a amazing kid. He's my new inspiration. I think of him everyday. When I saw him at school he made me happy to continue the day, even though I wasn't feeling to well. When I saw him walk to the morning announcements before the Thanksgiving break, saying his tumor has shrunk. I was so happy to see a wonderful kid like him getting better. Then when I heard the all the less fortune it news I would feel soo bad for him. All i knew is that he was smiling being happy as can be. Ben is a new kid in heaven with God, right in the front row of the school in heaven.
~ Madison
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