Hey Everyone, Ben is still fighting. We have now discontinued all of his medicine except his steroids. It is alot of work for him to swallow all of his pills. We are now spoon feeding him liquids the consistency of pudding. We moved his hospital bed into the living room now because it was too much work for him to sit up on the sofa so now we can just push the button and raise him up and down. He had a nice early morning visit with Mrs. Williams, Mrs. Hernandez, and Mrs. Hedlum from St. Andrews to brighten his spirits a little.
We Will update again later
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20 comments:
Sounds like this could be a start to a good Monday- keep fighting Lil Ben...we are not ready for you to go. We love and miss you tons!!! XOXO Kelli, Mike, Madi and Mikie
BEN YOU ARE SUCH A BRAVE SWEET LITTLE BOY! MY PRAYERS ARE WITH YOU AND YOUR FAMILY EVERYDAY!!
Pirate Ben, You dont know me, but I found out about you from a lady at work who's daughter goes to your school. (brighter horizons) My prayers are with you and your family! You are such a strong little man! Keep up the good work. The lord listens and hears everyones prayers!
It is wonderful that you are having a good morning. Ben my mom and I have been following your story for quite some time now. I want you to know you are in our thoughts and prayers. Keep fighting!!
Love, Shannel
Pirate Ben and Family,
Glad to hear you are still fighting. Enjoy your day and know that you have a world of people praying for your comfort and your family's strength!!! We Love You Pirate Ben!!!
Sharon Williams
Good Morning! Just checking in on brave pirate Ben and the rest of the family. Praying for all of you. I hope today is a good peaceful day for all of you. Please know that you are in our thoughts and prayers.
Love and Prayers
Cindy and Anna
Erin,
I don't really know what to say to you at a time like this. I heard from Melanie and my mother-in-law that Ben wasn't doing too good. I am so very sorry for all that you are going through. Please know that I pray for your family and, if you ever need anything, don't hesitate to call. This news saddens my heart deeply. God bless you.
Praying for your family as you go through this difficult time.
Anita Monroe
Va. Beach, VA
We love you Pirate Ben! Sounds like you had some great visitors this morning. I so wish we could be there to give you a kiss and maybe bring over some ice cream.
Ben and Erin - my thoughts and prayers are full of you and Ben and Shaun today, as always.
Dear Sweetest Ben,
If all the heavenly stars in the sky came down and shined their brightest light, it would be no match for the courageous shining light that shines in you – a light so beautiful and bright it shines brightly in all of our hearts. May your greatest pirate strength, bravery and peace be with you today and all the days ahead as you continue your fight. So many of us are thinking of you and praying for you this very moment.
God Bless You Little Pirate Ben!
Dear Brave Pirate, Pilot, Football Coach Ben, his brave first mate Shaun and his very brave crew. Many, many people -our friends, relatives, Bible study and church - are praying for you. I know that God is very proud of you.
From Virginia, Mark and Doris Gage
Gosh Pirate Ben---I am Hysham Pirate (Montana) and we wear Black and Gold!!
Prayers to yoou Matey
Kenna's Gammy
Kenna cp kennaemmons
Thank you for posting during this difficult time. You have a brave, strong little boy. You and your family are in my thoughts and prayers. May God be with you all.
LIL BEN
YOU ARE MY HERO
....AND I LOVE YOU!
MS. MEL
Ahoy Ben- Hmmmm. Liquids the consistency of pudding... I'm thinking half melted ice cream fits that description. Enjoy your 31 flavors, lil'Ben.
Love and prayers from Colorado,
Robin & Jared Crowley
Ben,
You are the bravest/strongest person I know of!! I can only imagine your strength is fueled by the love of your parents. As a member of your St Andrew family I can tell you SAS is FULL of love and prayers for you.
Dawn (and Spencer) Protti
To the cutest& bravest pirate and pirate's mate (Shaun,) you are loved beyond measure!! XXXOOO!!!
Tell your mom, dad, grandmas and grandpas, aunts, uncles, counsins they are also loved beyond measure also!!
I LOVE YOU!!!
Ms. Rita
Dear little Ben,
I live too far (Dallas) to come to see you but I hope you feel like tasting those flavors you haven't tried yet... that would make your day a little sweeter;)
I send you lots of love and kisses X0X0
To Erin and Ben,
Our eyes are teary as we think and pray for you and your family. You are very strong and I want to thank you for sharing Ben's story with all of us, silent supporters.
Marie-Andree Cloutier
Ben and Family -
You are all so very strong. Thank you Ben for being a friend and inspiration to us. You are awesome. We hope you have a great afternoon full love and laughter and friends and family.
You are in all of our thoughts and prayers.
Will and Ellie S.
Precious Pirate Ben. Can I just tell you how overwhelmingly (that means really, really) grateful I am to have a chance to follow the journey of one of the bravest boys, one of the most incredible people, I have ever known. You guessed it, that would be you! One thing's for sure, even though I have never met you in person, you have captured a piece of my heart, and I love you. And, you know what....I bet there are tons and tons and TONS of people out there just like me. I also bet that they, like I, want you to know that you are our Hero.
I am praying with all of my heart for you and your family.
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