We decided to move Ben to Children's hospital early this morning. We were having an extremely difficult time keeping him comfortable over night. When we got ready to move him we found that he had hemoraged out of nose because of his low platelets, and his port was not functioning properly.
We got him into the last available room on 4west. That Dr. Velez has got some pull when she makes a phone call at 7am. They were waiting for us to get here. They have already fixed the port and we are now waiting on morphine to make him a little more comfortable.
We will try to update again later in the day.
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33 comments:
Hang in there Lil Ben- hope that you get pain free soon. No one needs to suffer...glad you are in good hands at the Childrens Hospital. May God Bless You and Keep You...We love you! XOXO Kelli, Mike, Madi and Mikie
Erin,
God be with y'all today and always. Give Pirate Ben kisses for us! Many prayers going your way!!
Love,
Graci Thompson & Family
Erin,
God be with y'all today and always. Give Pirate Ben kisses for us! Many prayers going your way!!
Love,
Graci Thompson & Family
Erin
We will be there tomorrow. Call me if you need me to bring anything at all. Stay strong for your little pirate. You and Ben are doing a terrific job and are such an inspiration to us. You are in good hands. We are praying for comfort and no more pain for your little guy.
big Hug and Kisses
Chanda and John
Dear Sweet Ben,
I'm glad you're at Children's Hospital. They are the best and will help Mom and Dad take care of you.
I hope you get cozy and comfy and can get some good rest. We are all here, holding you in our hearts. Hugs to Mom and Dad...
Love, Miss Janel, Mr. Jay, Liam, Julia, Chloe' and all the St. Andrew community
Sarrat Family - - - WE ARE PRAYING FOR YOU, EVERYONE OF YOU as well as the gazillion who love your special little Pirate!!!
We pray especially this morning for our favorite little guy to feel the effects of the morphine and feel relief quick! Here's hoping he's free of pain soon and his new location is right where he needs to be this minute!!!
Our love to you all and please know we are here for you if we can do anything.
Jimbo and Lisa Coarsey
Lil Ben,
A strong pirate you are, matey! Prayers that you and your family remain strong.
With Love,
Ms. Con and family
To Pirate Ben and his family,
Stay strong little pirate, you are doing amazing. We are still praying for you and your family. You are in the care of specialists. God bless all of you! There are never too many prayers! God Listens!!!
Praying for all of you. Love, Susan Frazier
im gonna pray for a miricle for lil ben. He should be called big Ben as much as the child has had to go through.Go still heals and thats my prayer. that he is totally heald. It's got to be tough on the entire family, my prayers will also be for them as well. Kick this thing ben we are all pulling for ya.
May god be with you today. Praying for you and your family. God Bless
i hope everything goes okay. yall will always be in our prayers.
As I write this, I hope Ben has already received the comfort of his medication to ease his pain. There are so many people both near and far, friends and strangers, young and old who are all thinking of you each moment little Ben and praying for your comfort and peace to surround you and hold you and your family very close in God's arms.
God Bless you sweet Little Pirate Ben!
And God Bless Ben, Erin and Shaun and many more family and friends, doctors and nurses, coming together at this time to comfort and pray for everyone's bravest Little Pirate, Ben.
Praying for the comfort of Ben and his family. May your pain be released soon and a miracle be had. Keep fighting Ben as we are all praying for you!!! Stay strong and rest. you deserve it!!!! you are so Brave Pirate Ben.
Sharon Williams
Good rest at Children's can only bring more strength to continue your fight ... that's a good thing!!
We will do our little part by continuing our prayers for all of you.
Dawn (and Spencer) Protti
on my knees everyday praying as hard as i can.
praying the morphine kicks in and gets our pirate hero comfy.
all my love and then some,
dari
Big Ben and Erin,
We are praying for your little pirate. I hope that being on 4west will bring comfort and peace to all of you. You both are doing an amazing job caring for Ben. May God continue to give you strength and courage. Hugs to Ben!
Cindy and Anna
Dear Ben,
You are my hero! Thinking about you helps me to be brave. Thank you for being my friend. I pray for you everyday.
Love,
Iris
Pirate Ben!
What a blessing you and your family are to us all! When God created Heroes, he created the Sarrat Family. Erin, what an inspriration as a Mom you are to me! May you and your family Always Be Blessed! You are in our prayers daily!
My daughter, Isabella W. is in KM, and wanted to tell you that she cares and prays for you deeply everyday! She said to sing her favorite song, "Jesus Loves Me", and it will help you feel better. We love you Sarrat Family!
From Our Heart to Yours!
Cherie White and Family
Praying for Ben and family. His story is inspiring.
Hang in there, Pirate Ben! Praying so hard all the RSV issues are resolved and the latest round of radiation makes that awful tumor walk the plank.
Hi Ben,
I found out about you from my friends at St. Andrew. Even though we've never met I think about you often and pray for you and your family. You are so brave. Saying extra prayers today so that you can start to feel a little better. God bless you!
Hi Pirate Ben!
This is my first to visit your site. I understand you are one, tough pirate-type guy from a very sweet princess friend of mine with the initials J-AC.
I want you to know I'm praying for you and your family and asking the Lord to bless each of you with those certain, special things He sees you stand in need of right now. ♥
Angel Hugs and Prayers,
Ms. Polly
Angel_Wings Prayer Warriors
By the way, I live 'way up in the USA almost to Canada and it is chilly outside today even with the sun out. The thermometer reads 0*F and because there is a little wind the temp feels like -12*F! Brrrrrr.... :o0
The Igloo Life
The good thing 'bout living in an igloo is your house can never burn down.
And you never have to wash the windows or vacuum the dirt off the ground.
The bad thing 'bout living in an igloo,besides being very cold,
is there's no place to plug in a TV
and watching ice melt gets real old.
(C) 1998, Arden Davidson
Hi Ben I am praying that your pain is completely under control and that you are comfortable. Please know that I am thinking about you and keeping you close in prayer today. Hugs and Blessings MJ/Angel_Wings
Praying for comfort and a peaceful day for Ben and his family.
Many prayers for the Sarrat family, friends,Dr. nurses and all involved with our precious pirate!!
Love you'll
Ms. Rita
Each of you is constantly in my thoughts and prayers. I can't imagine what you must be going through but, I am inspired and fortified by your strength throughout this process, especially at this difficult time.
I hope Ben is more comfortable now and that the rest of the family is comforted by being at Children's.
You have so many people taking this journey with you, to love and support you. Let us help you in any way we can!
Ben and Family,
My family and I are praying for you. Ben we pray that the Dr's will be able to keep your pain under control. Sending lots of love hugs and prayers.
Love, Shannel & Sandy
Heartfelt thought and prayers are with all of you today.
Lil Ben,
You are such a fighter and what an inspiration you (and your family) are to us all. You and your family are in our prayers daily, throughout the day.
Much love, Mr. David, Mrs. Dina, Evan and Kamryn (KW).
Lots of loving thoughts and fervent prayers coming your way from Phoenix. I am awestruck by the bravery of Pirate Ben and his entire family. Love to you all!
Dear sweet Ben,
Thank you for coming into my life and teaching me how to be brave. I have been praying for you and drawing pirate pictures for you. I am glad we got to be friends this year. My family is praying that you stay pain free and are able to be at peace.
Love,
Cecelia
I dont go to sas, i used to. my brother goes there and im so sorry to hear about your story but Ive got plenty of religion classes praying for your son at my high school. best of luck in this time! we are all praying, good luck
love,abbey
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