Well its been a long, but good day. Ben has been awake here and there throughout the day. Even when you think he is sleeping he's not ...he's listening to everything around him and continuing to through out his T-shirt worthy one liners!
We had lots of great visitors today. Several of his buddies, Mitchell, Patrick, and Tanner can by with their families and we had a great game of Bingo...they all won it was amazing! All the local cousins came to play, and aunts and uncles, so that was fun as always. Grandma and Grandpa flew in from Phoenix and Aunt Mego and Mickey made it as far as Houston and will be here early Sunday morning. Ms Melanie and Ms Jessica were here most of the day and we love having them here to play! And our wonderful neighbors Ms Kim and Mr Tom were in and out all day. Thank you to everyone who came to see us Ms Rita, the other Ms Jessica and I hope I'm not forgetting anyone. Ben loves all his visitors!
So Ben heard his cousins were on there way and he asked when I was going to get his ice cream flavors today. For those of you who don't know Ben has a new friend Mr Chris who owns a 31 flavors. Mr Chris gave him a lifetime free ice cream pass, so the first time we went Ben asked what kinds they had I told him they had lots, that is why it was called 31 Flavors because well, they have 31 flavors...he then asked can I try all 31. I told him sure but not today, so we agreed we would make it our mission to try all 31! We had tried 7 before today. So he was sending me out to get two more flavors today, but Ms Melanie said she would go, and she came home with all 24 flavors we hadn't tried yet!!! So needless to say we ate ALOT of ice cream today. 10 more flavors down and 14 to go!!! When asked what his favorite so far is Ben can only mumble ALL! Thank you to Mr Chris and Ms Melanie for this fun diversion from reality!
Friends are welcome to stop by and see Ben in the next days, we just ask that you call first to make sure he is up for it. We are so blessed to have so many wonderful friends and family to support us through these last 15 months and this most difficult week ahead. Also a big thank you to my DIPG family and NOLA cancer moms you all have came to be so important to me!
We will keep you all posted as we can. Ben is resting comfortably right now, and I pray for an uneventful night.
Love to all
The Sarrat Family
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Join Pirate Ben's Crew!! Click Here: Visit Team Unite today to see how YOU can help CONQUER CHILDHOOD CANCER!
Special thanks to Heide Randall for including Ben in her amazing awarenss campaign! Click on Ben's picture to take you to her site.
Ben is an amazing 5 year old boy. He was diagnosed with a Diffuse Intrinsic Pontine Glioma (DIPG)(an inoperable brain tumor) in Nov 08. Ben wants to share his fight with cancer with you, this is his story...
Pirate Ben
Join Pirate Ben's Crew!! Click Here: Visit Team Unite today to see how YOU can help CONQUER CHILDHOOD CANCER!
Postcard for Ben!!
Ben and his Aunt MegO are trying to collect postcards from everyone who follows his blog. We put them up on a big map in his playroom - he loves finding out where everyone pulling for him lives! Please send postcards to:
Brighter Horizons
Pirate Ben and matee's
110 Barriere Rd #A
Belle Chasse, LA 70037
Thanks - We'll post pictures of the map soon!
Brighter Horizons
Pirate Ben and matee's
110 Barriere Rd #A
Belle Chasse, LA 70037
Thanks - We'll post pictures of the map soon!
Ben Sarrat - Pediatric Brain Tumors Wall of Courage
Special thanks to Heide Randall for including Ben in her amazing awarenss campaign! Click on Ben's picture to take you to her site.
Ben's Joke of the Day
- Q: Why did the hippopotamus sit on the fence?
- A: Because he wanted to break the fence down!
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- Change of Location
- Long Evening
- Afternoon
- A New Morning
- No Ice Cream today
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18 comments:
Lifting your family up in prayer! God bless you!
C.O.L.E. Prayer Team
www.colesfoundation.com
Good morning, sounds like ice cream for breakfast!! Do they have a Fruit Loop flavor? Hopefully not oatmeal!! lol!
You and all your family are in my thoughts and prayers!
I love you!! XXXOOO
Mrs. Rita
ice cream for breakfast you bet sounds good!!! enjoy the adventure of trying them all my prayers are in your home with all of you
Hi Ben and Family Ice Cream sounds wonderful for breakfast !! Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings
Love, hugs, and prayers coming your way, Erin and Big Ben!!! ♥ Wishing you peace and strength. ♥
~Heide
m/o ^Jessica^ (Forever 17) & Jake (18)
http://caringbridge.org/visit/jessicarandall
http://teamunite.net
http://wallofcourage.com
Ahoy Ben,
Ice cream for breakfast, ice cream for lunch, and ice cream for dinner. We're with Ms. Rita and hoping oatmeal isn't one of their flavors although that sounds better than scrambled eggs ice cream...YUK!!!
As always, here are some jokes, this time about ice cream.
Q. How do astronauts eat their ice creams?
A. In floats
Q: How do you make a dinosaur float?
A: Put a scoop of ice cream in a glass of root beer and add one dinosaur!
Q: What do you get from an Alaskan cow?
A: Ice Cream
Q: What do you get if you divide the circumference of a bowl of ice cream by its diameter?
A: Pi a'la mode.
Much love coming your way.
Adios amigos!
Dave and Ginger
Ahoy there, Amazing Pirate Ben! Don't tell my daughter this surprise, but because of reading your journal and guestbook, I have decided that for lunch today, we will have, none other than strawberry and banana sundays. I can only imagine how tickled she'll be when she learns that because of the Awesome Pirate Ben, she gets to have ice cream for lunch!
Thinking of and praying for you and yours......
Praying for peace, comfort, strength, and precious moments with Ben.
Love and Prayers,
Melanie, Hank, and Kale
www.caringbridge.org/visit/kalebradford
Can not stop thinking of you guys. Praying for all of you. I hope today is a good day full of ice cream tasting! Please hug Ben for us.
Love and Prayers,
Cindy and Anna
www.caringbridge.org/visit/annakitchen
Hi Lil Ben,
You are so special to have all the friends you do. We're glad you had fun with all your cousins, and that Grandma and Grandpa are with you.
You're terrific Lil'Ben and thank you for your messages.
Love, Paul and Debbie Hobaica
I visited today and walked away in awe over this wonderful family. Ben has so much love around him at all times. And I can only imagine how very proud Erin's Mom is over the daughter she has. You are an amazing woman and mother Erin!!!
Namaste....
My lil pirate buddy and family,
i love the ice cream! how fabulous that you have the remaining flavors. sending a gazillion prayers and warm fuzzie hugs and kisses blown into the wind. they should arrive any minute!
with love and hugs and big sloppy pirate kisses,
dari
Lil Ben and Family,
I have never tasted all 31 Flavors of ice cream - I am jealous!
The Consentino/Gianforte families are thinking of you today.
With Love and prayers,
Carol ("Ms.Con", Tony, Becca, Gracie and Dominic
Hi Ben,
So glad you got to eat all that ice cream. I'm sure that will help you feel better!
We love you guys and are anxiously awaiting a miraculous turn-around caused by the ice cream treatment.
Darren
Hello Pirate Ben!
Sending you lots of love and prayers to you and your family.
Dear Ben and Family!
I am a friend of Linda Le who graciously shared your story. Ben and your family are in my thoughts and prayers.
I work for a company called Pirate's Booty and would love to send you all some goodies in Pirate Ben's honor.
The Anschlowar Family
Oh Ben you have to try the Chocolate and Peanut butter - that is Graci and my favorite!!
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